After being diagnosed as "look like you might have ms", I thought that I'd hold off for a while in looking for medicine besides being forced to make a choice between the big four (rebiff, copaxone, chemo, etc. etc. etc.) After going almost completely deaf in one ear, I begged my neurologist for something to stop the annoyingly persistent ringing in my ear. I was prescribed prednisone. And you know what? It helped tremendously. However, I was concerned that everytime that I'd get a numb patch on my arm or leg. burning sensation, tingling, double vision, loss of balance, or whatever that I'd be begging for more of this stuff. This could be happening many times per year. NOT GOOD. I finally got the BALLS to ask my Neurologist about LDN. He looked at me as-a-matter-of-factly and said "there's no scientific proof that it works, besides I only prescribe that to people that lack energy." I left feeling dejected. After researching Doctors that would be willing to prescribe it, I found that was from many of them lived 100s of miles away. The closes one I found was from my home state of Pennsylvania; 650 miles away.
This past Christmas holiday I was driving north to see our family. All of a sudden my wife says "give me the phone!" "Why?" "I'm calling your doctor!" "uh...okay, here". She calls and let's the triosh nurse have it! You can tell by Lola's tone of voice that they did not want to prescribe the LDN, but Lola was very presistent and demanding thank God. So she ends up convincing the Dr to write 6 refills of the low dose naltrexone. (My wife ROCKS!)
Now I've been on LDN for about 5 months now. I still have my ups and downs, but they are minor in comparison to before. I recommend this drug to anyone with MS. However, I am determined to be drug free and healed THIS YEAR. I am here to love you and to help you in the best way I can. I not only do this for myself, I do it for I and I (we and us). I love you all! Please stay inspired and inspire me as well.
